PDF Download Lupus, by Suzy Szasz
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Lupus, by Suzy Szasz
PDF Download Lupus, by Suzy Szasz
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Review
"Szasz, an academic reference librarian, has written a mesmerizing account of her life as a sufferer of Systemic Lupus Erythematosus, or lupus.... Highly recommended for popular health collections."--Library Journal
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About the Author
A native of Syracuse, NY, Suzy Szasz retired as head of Greenwood Library of Longwood University in June 2016 after five years at Longwood. Previously she had been the Deputy Librarian of Virginia (at the Library of Virginia), Associated Dean for Collections, Preservation & Digital Initiatives at the University of Louisville Libraries, and had held various positions at the Cornell University Library for more than 20 years.Suzy is a past president of the Virginia Library Association and also served as Chair of the State Council of Higher Education of Virginia (SCHEV) Library Advisory Council. She has also been vice president/president-elect of the Richmond Academic Library Consortium and the Association of Specialized and Cooperative Library Agencies/State Library Agency Section, a division of the American Library Association (ALA). She remains a member of editorial boards including: LL&M (journal of the American Library Association/Library, Leadership & Management Association) and Public Services Quarterly, and was previously on the board of Preservation, Digital Technology & Culture (and served twice as editor-in-chief under previous titles). She has spoken nationally and internationally on a variety of topics including the ethics of reference service and the future of the book.Suzy interests and time are now devoted to health care and patient engagement & advocacy, political campaigns, and other volunteer work in Richmond, VA.
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Product details
Paperback: 243 pages
Publisher: Prometheus Books; 1 edition (October 1, 1995)
Language: English
ISBN-10: 1573920231
ISBN-13: 978-1573920230
Product Dimensions:
6 x 0.8 x 9 inches
Shipping Weight: 8 ounces
Average Customer Review:
4.1 out of 5 stars
4 customer reviews
Amazon Best Sellers Rank:
#3,054,678 in Books (See Top 100 in Books)
Ms. Szasz' journey with lupus is decidedly atypical, and could unduly alarm many who suffer from lupus. Yet, her pluckiness and approach to her illness can help the faint of heart advocate for themselves in dealing with their illness and with their physicians. Although I often felt that her relational functionings left something to be desired, and felt this was a book I wouldn't want to own, in the end, I had formed an affection for her. I often remember and savor the lessons I learned and her wry wit. Finishing the book was like saying goodbye to an enigmatic friend who has lived life with bravery and zest, and who taught you a few flourishes along the way..This is not a book which details symptoms, diagnosis and treatment of lupus, but rather, as the author states, a book about what it is like to live daily with a chronic illness whose effects are not readily apparent nor understood by those who surround its target.
I have read this book over 6 times and I always catch something new. Thanks to this book it helped me cope a little with the medication my doctor has put me on. This is a wonderful read and very informative.
Can a person live a flourishing, purpose-filled life in spite of chronic illness and near constant pain? According to author Suzy Szasz, the answer is a resounding, "yes". Szasz's book, Lupus. Living With It: Why You Don't Have To Be Healthy to Be Happy, is written with an enthusiasm for life. Despite her constant battle with the exhausting chronic illness, Lupus, Szasz retains her meaning in life by refusing to become a victim of her disease.From reading Suzy's book, I found that she accepts the existentialist challenge of creating meaning for herself, rather than endlessly searching for meaning. She maintains her dignity by refusing to play the victim role. Although she rightly could have accepted such a role given her situation.Instead of just blindly accepting the advice of her physicians, she does research for herself, reading journal articles that she can only halfway understand. At one point, she and her father visit a world-renowned physician who specializes in Lupus. The physician fails to address Suzy as a person (making her out to be a mere object) and tells her to dramatically increase her steroid medication. When her father asks about harmful side effects of the drug, "but doctor, won't that destroy her bones?", the specialist glibly responds that her bones are not her concern right now. Rather than accepting the advice, Suzy does her own research and eventually finds a way to keep her disease from flaring up by getting a splenectomy.The key insight I took away from this stimulating book was to refuse to see yourself as a victim, no matter how tempting it is to do so. Suzy was able to give her life meaning through constantly striving in academics, work, writing, and the refusal to be victimized by a relentless illness. For those of us who still have our health, we should all the more so refuse to be victims of our own making.
I, too, was fascinated with the author's journey and disturbed by her relationships with others. She is judgemental and critical of those upon whom she relies. And she relies on them very, very much. Obviously she comes from wealth and means,never struggling with the pain and difficulties that come from financial ruin, dealing with Social Security Disability, poverty and working, even while very sick, when your very survival depends upon it. Not all of us have Wealthy Doctor Daddy to rescue us whenever we are in trouble. Having said that, I relate to and admire her chutzpah in dealing with her doctors, her efforts to be informed and educated about her illness and her willingness to take responsibility for managing her illness. Her story is most useful in showing persons with chronic illness how to manage their care and advocate for themselves. It is a compelling story, nonetheless!
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